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Cystic Fibrosis: Does a disability’s history start with its first diagnosis?

Aaron Patmore

History with English Language

4th

4th

anastasia nairne.jpg

Abstract

‘Woe to that child who tastes salty when kissed on the forehead. He is bewitched and soon must die’. Rather foreboding, isn’t it? This is one of many proverbs that alludes to the historical representation of Cystic Fibrosis, far beyond the first diagnosis in 1938. When researching my own condition of Cystic Fibrosis I sought to find out the history of it. What I found was that there wasn’t much past the first diagnosis in 1938, being dissatisfied with the extent of the information on general sights I went further, went deeper and was surprised to find a plethora of examples of conditions similar to mine going as far back as the 16th century. This journey took me to archives, translating Spanish, Polish and Swiss Proverbs. All this accumulated into my findings that Cystic Fibrosis’ history reaches far beyond the initial diagnosis in 1938 and thus in this presentation I will ask, ‘Does a disability’s history start with its first diagnosis?’

Bio

Hi, I am Aaron Patmore, I am in my final year of my History with English Language joint honours degree. I have immensely enjoyed my time at the university and the opportunity I have been given to get grow closer with my condition as thanks to my dissertation. I also love Old Languages and have enjoyed the opportunity to translate Old English and Old Germanic as part of this project. I hope to share part of my journey with you all and that you take something, whether it be comfort or solidarity from my talk.

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